A Look at Rare Disease Listening Sessions with NORD and the FDA

FDA Patient Listening Sessions: NORDПодробнее

FDA Listening Session: COVID19 Impact on Rare Disease CommunitiesПодробнее

Engaging Latino Rare Disease Communities: Lessons from NORD’s Latinos and Rare ProgramПодробнее

MDA Advocacy Institute: Rare Disease PolicyПодробнее

PFIC FDA Listening SessionПодробнее

NORD Community Conversation: The Living Rare StudyПодробнее

FDA Draft Guidance: Rare Disease Clinical TrialsПодробнее

FDA Rare Disease Day 2023: “Intersections with Rare Diseases – A patient focused event”Подробнее

Dr. Janet Maynard Recognizes Successes and Continued Need for Rare Disease Research GrantsПодробнее

Patients Matter: Giving Patients a Seat at the TableПодробнее

Rare Disease Day 2021 | RAN ColoradoПодробнее

Patient Engagement at the FDAПодробнее

Understanding Rare Disease Registries Part 1Подробнее

In the Spotlight: Recent FDA Updates and Guidance for Rare Disease Drug DevelopmentПодробнее

NORD Timeline | A History of LeadershipПодробнее

Take the Leap! Forming a 501(c)(3) & Establishing a Disease Registry to Advance Your Rare CommunityПодробнее

Your Voice Matters: How to Engage with the FDAПодробнее

RARE Drug Development Symposium: Repurposing in Rare DiseaseПодробнее

Navigating Diversity, Equity, and Inclusion in Rare Disease Non-Profits (DEI Series: Part 1 of 3)Подробнее