Barth Syndrome Foundation

Recommendation of Approval for Barth Syndrome TreatmentПодробнее

The Business of Rare Policy Summit 2022: Fireside Chat Reenie McCarthy and Emily MilliganПодробнее

Raising Awareness About Barth Syndrome and Other Rare Diseases With Maria Picone TREND.community ...Подробнее

Abe's StoryПодробнее

The World of Rare Disease: Barth SyndromeПодробнее

The World of Rare Disease: RNE Highlights Barth Syndrome FoundationПодробнее

Barth Syndrome Spotlight Feb-1-2020Подробнее

Barth Syndrome Foundation | Happy Heart Auction '22Подробнее

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TREND Community's Trip To DC for Rare Disease 2020Подробнее

2016 10 25 Barth Syndrome Foundation 35 PSAПодробнее

Potential Therapies for Barth Syndrome: Brittany DeCroes Hornby, PT, DPT, PCSПодробнее

Barth Syndrome Foundation PSAПодробнее

Potential Therapies for Barth Syndrome: Michael T. Chin, MD, PhD, FACC, FAHAПодробнее

2019 1 12 Barth Syndrome Foundation 39 PSAПодробнее

Vitamin and mineral supplemementation in Barth Syndrome (Family Sessions)Подробнее

Lindsay Groff, Barth Syndrome Foundation HDПодробнее

How do women adapt to being a Barth Syndrome carrier (Family Sessions)Подробнее

Barth Syndrome: In simple termsПодробнее