EU Rare Disease Platform

H3Africa Rare Disease WG: European Rare Disease Network (ERN): ITHACAПодробнее

ReCONNET: the collaborative platform for rare autoimmune diseases in EuropeПодробнее

European rare disease research in crisis?Подробнее

ENROL Webinar for patients: 1. Networking on European Registries in Rare Hematological DisordersПодробнее

How Data Sharing in the EU Is Revolutionising Rare Disease TreatmentПодробнее

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Europe Rare Disease Summit | Bamberg Health | 2023Подробнее

Overcoming the burden of rare diseases in Europe | POLITICOПодробнее

What is ENROL? European Patients Registry on Rare Hematological DisordersПодробнее

Ireland & the European Health Union: What will it mean for rare diseases?Подробнее

Early diagnosis of patients with rare disorders in the EU:crucial role of the newborn screeningПодробнее

Living with Rare Liver Diseases in Europe WebinarПодробнее

Early diagnosis of patients with rare disorders in the EU:crucial role of the newborn screening II.Подробнее

Innovation in rare diseases: How can Europe be a global leader? | Euronews DebatesПодробнее

Expert Conference on Rare Diseases - live stream: Day 2Подробнее

European Rare Disease Ecosystem: A Collaborative Path Forward, 9 November 2021Подробнее

Webinar: "The Future of Rare Diseases in Europe & Czech Republic"Подробнее

Expert Conference on Rare Diseases - live stream: Day 1Подробнее

Rare Disease Day WebinarПодробнее

Rare Autonomic Disorders- Glen Cook, MDПодробнее