Rare Disease Advocacy

Rare Disease Nutrition: Simplifying Meal Planning for Busy Parents with Chardell BuchananПодробнее

Help Us Protect Rare Disease TreatmentsПодробнее

Very #rare #disease #health #support #Donation #campaign #nerve #regeneration #Fight for #survivalПодробнее

Inside the Fly Little Bird Foundation: Pioneering Hope in Rare Disease Research 1 Minute VersionПодробнее

Crohn's and Colitis Awareness Week | ORDI | Organization for Rare Disease in India | BangaloreПодробнее

Baton Rouge mom loses only child to rare disease; working to find cure through advocacy groupПодробнее

Inside the Fly Little Bird Foundation: Pioneering Hope in Rare Disease Research 5 Minute VersionПодробнее

Patients’ voices power breakthroughs in rare diseasesПодробнее

Livestream with Dr. Lisa Van Allen, Chair of RSDSA’s Advocacy CommitteeПодробнее

Episode 3: Rare Disease Advocacy and Owning Your Story with Abbey HauserПодробнее

Decoding ASXL Mutations: An Interview with Mom and Rare Disease Advocate, Laura BadmaevПодробнее

Inside the Rare Disease Breakthough Summit: My Journey as a Patient Advocate #rare #scienceПодробнее

30: Decoding ASXL Mutations: Hope and Advocacy in Rare Diseases, An Interview with Mom and Rare D...Подробнее

New Findings on Inequities in Rare Diseases: How They Impact Research and Clinical Trials ProcessesПодробнее

Kelly du Plessis on fighting for her son and rare disease advocacy in South AfricaПодробнее

In Conversation with Bijaya Mishra: Exploring Nepal's Rare Disease Landscape & IndoUSrare's RoleПодробнее

In Conversation with Pankaj Bhargava: Ashibio’s Mission, Rare Disease Access, & Global ChallengesПодробнее

Pioneer in rare genetic diseases advocacy | Star Golden Hearts Award 2024Подробнее

Finding Support for Rare DiseasesПодробнее

Pulmonary Hypertension Awareness: Strength in Every Breath | Organization for Rare Disease in IndiaПодробнее