Rare Disease Week 2021

Rare Disease Congressional Caucus Briefing - Rare Disease Week on Capitol HillПодробнее

2022 Rare Disease Week - Policy Deep Dive: Speeding Therapy Access Today (STAT) ActПодробнее

2022 Rare Disease Week - Newborn Screening Saves Lives Reauthorization Act and BeyondПодробнее

Rare Disease Week in Capitol Hill 2022Подробнее

FFFR Practice Your Pitch 2021Подробнее

Everylife Foundation- The Power of Rare Disease Advocacy - Shannon vonFeldenПодробнее

13th Annual Rare Disease Scientific Workshop: October 20, 2021Подробнее

2022 Rare Disease Week - Welcome and 2022 Legislative AsksПодробнее

2022 Rare Disease Week - Young Adult AdvocacyПодробнее

Share Your Story with Policymakers Training: Rare Disease Week 2022Подробнее

TREND at Rare Disease Week 2020Подробнее

Rare Disease Week 2021: Newborn Screening Saves Lives Reauthorization ActПодробнее

Rare Disease Week 2021: YARR Leadership Academy Graduation CeremonyПодробнее

Rare Disease Week 2021: Legislative Conference - Speeding Therapy Access Today (STAT) ActПодробнее

Rare Disease Week 2021: Diversity RoundtableПодробнее

Rare Disease Week 2021: Hot Topics in Rare Disease PolicyПодробнее

Rare disease week 2021 meetings with members of CongressПодробнее

Rare Disease Week 2021: Young Adult Advocacy SessionПодробнее

Rare Disease Week 2021: Welcome ReceptionПодробнее

Rare Disease Week Documentary Screening and PanelПодробнее