Rare Disorder Odyssey | Superficial Siderosis

Decoding Superficial SiderosisПодробнее

The Faces of Superficial SiderosisПодробнее

Rare Disease Parent Educational Series | The Diagnostic OdysseyПодробнее

What is Superficial SiderosisПодробнее

The Global Commission to End the Diagnostic Odyssey for Children With a Rare DiseaseПодробнее

Diagnostic Odyssey within Rare DiseasesПодробнее

Superficial SiderosisПодробнее

Superficial Siderosis PresentationПодробнее

Justin's Odyssey: A journey in rare disease data sharingПодробнее

Improving the Diagnostic Odyssey for Rare Disease PatientsПодробнее

Hear Seth's Story for Rare Disease Day | Behind the MysteryПодробнее

Partnership for Educating Healthcare Poviders on Rare Diseases - Michelle SnyderПодробнее

Webinar on The Global Commission to End the Diagnostic Odyssey for Children with Rare DiseasesПодробнее

Challenges of Diagnosing Rare DisordersПодробнее

Rare Disease SpecialПодробнее

Complexities of Rare Disease TrialsПодробнее

SSRA 2021 Year End Update with Dr. Michael LevyПодробнее

#WeWontRest until we make rare disease even rarerПодробнее