Webinar: European Year for Rare Diseases

RDI Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025Подробнее

MPE and ALAN webinar | Patient and clinician involvement in the EU HTA regulationПодробнее

Orphan Drug Designation Webinar VideoПодробнее

Webinar: European Policy Roundtable Event hosted by GlobalSkin & ESDR on February 6, 2024Подробнее

Webinar for the presentation of one of the 24 ERNs on rare diseases, Retina BulgariaПодробнее

ERN GUARD-Heart webinar 12: ESC guidelines for the management of cardiomyopathiesПодробнее

EU-Ukraine Spinal Dysraphisms Webinar 1: Project introduction & overviewПодробнее

Healthcare Webinar - Approaches to Evaluate Evidence on Rare Disease GuidelinesПодробнее

Patient Partnership Webinar - Unlocking ERN Potential: Disease Specific MeasuresПодробнее

Rare Barometer Webinar on the results of the NBS surveyПодробнее

🔴 RDD webinar: how to raise awareness among healthcare providers?Подробнее

ESE Talks...Rare Diseases: A joint webinar from ESE, Endo-ERN and ESPEПодробнее

ENROL Webinar for patients: 1. Networking on European Registries in Rare Hematological DisordersПодробнее

Webinar: "The Future of Rare Diseases in Europe & Czech Republic"Подробнее

ERN eUROGEN Webinar 82: Living with a rare disorder Parent and patient experiencesПодробнее

Webinar: Rare Disease Centres of ExcellenceПодробнее

ESE Talks... Rare Diseases: MEN-1 - a joint webinar from ESE, Endo-ERN and ESPEПодробнее

EURORDIS Partnership Webinars: Rare Disease National Networks & ERN National Coordination HubsПодробнее

Webinar Rare Disease Day 2023 - Download materials on our website to raise awarenessПодробнее

Thursday Webinars - Primary Myelofibrosis: diagnosis and treatmentПодробнее