What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform

C-Path's RDCA-DAP Executive Director Alexandre Betourne talks about data sharing with RDCA-DAPПодробнее

C-Path's RDCA-DAP Executive Director Alexandre Betourne talks about data sharing with RDCA-DAP

Improving Data Collection for Rare Epilepsies: Case example from the TSC Natural History DatabaseПодробнее

Improving Data Collection for Rare Epilepsies: Case example from the TSC Natural History Database

Hidden in Plain Sight: Autosomal Dominant Tubulointerstitial Kidney DiseaseПодробнее

Hidden in Plain Sight: Autosomal Dominant Tubulointerstitial Kidney Disease

VCP Disease(s), an Integrated Approach to Neurodegenerative DisordersПодробнее

VCP Disease(s), an Integrated Approach to Neurodegenerative Disorders

Dr Alexandre Betourne - The Rare Diseases Cures Accelerator Data and Analytics PlatformПодробнее

Dr Alexandre Betourne - The Rare Diseases Cures Accelerator Data and Analytics Platform

The Role of Integrated Datasets in Addressing Rare Diseases Research ChallengesПодробнее

The Role of Integrated Datasets in Addressing Rare Diseases Research Challenges

Shared Stewardship in Collaborative Curation of Rare Disease DatasetsПодробнее

Shared Stewardship in Collaborative Curation of Rare Disease Datasets

Understanding Disease Progression Models: What are They, Why are They Useful, & How Are They AppliedПодробнее

Understanding Disease Progression Models: What are They, Why are They Useful, & How Are They Applied

The Influential Role of Patient Advocacy Groups in Registry Data FormatsПодробнее

The Influential Role of Patient Advocacy Groups in Registry Data Formats

RARE Advocacy Summit 2023: Crafting a Data Sharing StrategyПодробнее

RARE Advocacy Summit 2023: Crafting a Data Sharing Strategy

Rare Disease Patient Voice: Kurt MichelsПодробнее

Rare Disease Patient Voice: Kurt Michels

RDCA-DAP - Value of Integrated Data and Analytics in Rare Disease Drug DevelopmentПодробнее

RDCA-DAP - Value of Integrated Data and Analytics in Rare Disease Drug Development

2021 RDCA-DAP Annual Workshop: WelcomeПодробнее

2021 RDCA-DAP Annual Workshop: Welcome

RDCA-DAP: Exploring/visualizing data in RDCA-DAP to identify data of interest for advanced analysisПодробнее

RDCA-DAP: Exploring/visualizing data in RDCA-DAP to identify data of interest for advanced analysis

How Will RDCA-DAP® Support Patient-Focused Drug Development?Подробнее

How Will RDCA-DAP® Support Patient-Focused Drug Development?

How Patient Nonprofits Can Help Accelerate Drug DevelopmentПодробнее

How Patient Nonprofits Can Help Accelerate Drug Development

RDCA-DAP End-to-End Platform DemonstrationПодробнее

RDCA-DAP End-to-End Platform Demonstration

RDCA-DAP Collaboration with Clinerion for Real World Data SolutionsПодробнее

RDCA-DAP Collaboration with Clinerion for Real World Data Solutions

Webinar: How RDCA-DAP can help inform optimal trial design in progressive rare diseaseПодробнее

Webinar: How RDCA-DAP can help inform optimal trial design in progressive rare disease

Sharing Data With RDCA-DAP: Your Questions AnsweredПодробнее

Sharing Data With RDCA-DAP: Your Questions Answered