New Jersey Father Hoping To Raise Awareness About His Daughter's Rare Disease

New Jersey Father Hoping To Raise Awareness About His Daughter's Rare DiseaseПодробнее

New Jersey Father Hoping To Raise Awareness About His Daughter's Rare Disease

Bay Area Family Tries To Raise Awareness, Funds To Fight Rare DiseasesПодробнее

Bay Area Family Tries To Raise Awareness, Funds To Fight Rare Diseases

New Jersey Father Hoping To Raise Awareness About His Daughter's Rare DiseaseПодробнее

New Jersey Father Hoping To Raise Awareness About His Daughter's Rare Disease

Sydney's song: Family's mission to raise awareness about rare diseaseПодробнее

Sydney's song: Family's mission to raise awareness about rare disease

KC family helping spread awareness after daughter's rare diseaseПодробнее

KC family helping spread awareness after daughter's rare disease

NJ family raising awareness of Trisomy 18Подробнее

NJ family raising awareness of Trisomy 18

Mom discovers daughter's rare disorder from TikTok video, now she's raising awareness for a cureПодробнее

Mom discovers daughter's rare disorder from TikTok video, now she's raising awareness for a cure

Dad hopes to raise awareness for daughter's rare diseaseПодробнее

Dad hopes to raise awareness for daughter's rare disease

Father aims to raise awareness for daughter's rare diseaseПодробнее

Father aims to raise awareness for daughter's rare disease

WATCH | Dad running to raise awareness of daughter’s rare disorderПодробнее

WATCH | Dad running to raise awareness of daughter’s rare disorder

Mom of Daughter with Rare Disease: Goldwater's Right to Try 2.0 Reform Offers 'Chance at Hope'Подробнее

Mom of Daughter with Rare Disease: Goldwater's Right to Try 2.0 Reform Offers 'Chance at Hope'

Sherwood Park family loses daughter to rare disease, fights for sister’s treatmentПодробнее

Sherwood Park family loses daughter to rare disease, fights for sister’s treatment

Rare Disease Day Aims To Raise Awareness For 30 Million People Battling Rare DiseasesПодробнее

Rare Disease Day Aims To Raise Awareness For 30 Million People Battling Rare Diseases

NJ dad to climb Everest to raise awarenessПодробнее

NJ dad to climb Everest to raise awareness

Hoboken family raising awareness of rare disease following daughter’s deathПодробнее

Hoboken family raising awareness of rare disease following daughter’s death

Sydney's Song: Family on mission to raise awareness of rare diseaseПодробнее

Sydney's Song: Family on mission to raise awareness of rare disease

Raising awareness about rare diseaseПодробнее

Raising awareness about rare disease

Family raising awareness about rare conditionПодробнее

Family raising awareness about rare condition

Colorado family raising awareness about new treatment for a rare diseaseПодробнее

Colorado family raising awareness about new treatment for a rare disease

Orphan Illness: Fernandina family searching for answers for daughter’s rare genetic disorderПодробнее

Orphan Illness: Fernandina family searching for answers for daughter’s rare genetic disorder